We're in this to win

Voices of Winged Warriors unites grievers, Warriors, and allies through programs and activities that help transform life with sickle cell.

For Grievers

If your sickle cell warrior has passed away, Voices of Winged Warriors (VoWW) is here for you. This collective of caregivers, loved ones, and allies left behind still wants to educate, advocate, and drive action for better sickle cell outcomes.

While great strides are being made in sickle cell research, it hasn’t come in time for too many warriors. World-wide, every day, more than 1,000 individuals lose their lives to sickle cell. We know how that feels and we want to do more.

Together at VoWW, we can honor our warriors and help create change for a better future.

For Warriors, Caregivers & Allies

Research is bringing cures and transformation to many, but we know that isn't every Warrior's reality - whether by choice or by chance.

So, in the meantime, Voices of Winged Warriors aims to keep Warriors well. From everyday health maintenance tips to ongoing care management and emergency room guidelines. We're coordinating programs and collaborating with others to help get the right care for individuals with sickle cell. VoWW wants a different world for you and we're fighting for it every day.

About May

Monthly health and wellness tips to help improve your quality of life.

Mental Health
Awareness Month

Sickle cell effects individuals physically and mentally, which can lead to conditions like anxiety and depression. It's okay to seek help. If you or someone you know is in danger of self-harm, call 988 or visit the Lifeline Chat to connect with a trained crisis counselor.

LEARN MORE

American/National Stroke Awareness Month

Screening for stroke typically begins at age two for individuals with sickle cell. Those at high risk may begin a regimen of ongoing blood transfusions to reduce the risk of occurrence. Would you recognize the signs of a stroke? B.E.F.A.S.T. to help save the brain when stroke happens.

LEARN MORE

Healthy Vision
Month

Individuals with sickle cell need to pay particular attention to their eye health to preserve their vision. Sickling can happen anywhere blood flows in the body - including the eyes. Click here to watch an educational video about sickle cell retinopathy.

LEARN MORE

Winged Warrior Thomas drawing on his iPad

A promise in a movement for change

Whether your loss was today, recently, or years ago, we know grief persists. We know you're in a club you never wanted to belong to. But, together we can be a tribe, finding our way forward while voicing a better world into existence for other warriors.

I'M INTERESTED

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Tell us about your Sickle Cell Warrior

Even though they've passed on, your Winged Warrior is important to you and their life matters. Here at VoWW, we will make space to memorialize our warriors and celebrate their lives. We encourage you to share their journey and yours.

SHARE YOUR STORY

Quality Emergency Department Care

One of VoWW's primary strategic goals is to move beyond awareness. Through Sickle Cell STAT, we work to help ensure that knowledgeable, quality, guideline-based emergency room treatment becomes the standard for every individual with sickle cell.