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Solidarity

We're in this to win

Voices of Winged Warriors unites grievers, Warriors, and allies through programs and activities that help transform life with sickle cell.

Thank You!

We're extremely grateful for the support of Koegel Meats and the Cork on Saginaw for supporting VOWW.

 

Their generous donation will help drive our Warrior wellness programming, the push to create a Sickle Cell STAT ER directory, and our efforts to connect grievers to healing.

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For Grievers

If your sickle cell warrior has passed away, Voices of Winged Warriors (VoWW) is here for you. This collective of caregivers, loved ones, and allies left behind still wants to educate, advocate, and drive action for better sickle cell outcomes. 

 

Together at VoWW, we can honor our warriors and help create change for a better future.

For Warriors, Caregivers & Allies

Research is bringing cures and transformation to many, but we know that isn't every Warrior's reality - whether by choice or by chance.

 

So, in the meantime, Voices of Winged Warriors aims to keep Warriors well. From everyday health maintenance tips to ongoing care management and emergency room guidelines. We're coordinating programs and collaborating with others to help get the right care for individuals with sickle cell. 

 

VoWW wants a different world for you and we're fighting for it every day.

About July

Monthly health and wellness tips to help improve your quality of life. 

White Rose Tribute

Bereaved Parents Awareness Month

Losing a child is not the natural order of life. In addition to the "typical" complexities of grief, mourning a child often includes feelings of guilt or remorse not felt with other losses. If you're on this journey, we encourage you to reach out to us for support.

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Fourth of July
Holiday

This barbecue and fireworks-filled holiday also serves as a reminder that freedom isn't free. Good health and access to quality healthcare are often tied to legislative policies that result from the people we vote into office. Are you registered to vote?

Woman Whispering Secret

Save the date:
Warriors on Wheels

Mark your calendars and get ready for a good time:

Thursday, August 27, 2026

from 6-9 p.m.

Location and details to be announced soon. Meanwhile, get your family, friends, and the whole chat group ready!

STAY TUNED!

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​A promise in a movement for change

Whether your loss was today, recently, or years ago, we know grief persists. We know you're in a club you never wanted to belong to. But, together we can be a tribe, finding our way forward while voicing a better world into existence for other warriors. 

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Tell us about your Sickle Cell Warrior

Even though they've passed on, your Winged Warrior is important to you and their life matters. Here at VoWW, we will make space to memorialize our warriors and celebrate their lives. We encourage you to share their journey and yours.

Quality Emergency Department Care

One of VoWW's primary strategic goals is to move beyond awareness. Through Sickle Cell STAT, we work to help ensure that knowledgeable, quality, guideline-based emergency room treatment becomes the standard for every individual with sickle cell.

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A Caregiver's Perspective

This sickle cell advocacy series features our Founder & CEO, filmed for Vertex Pharmaceuticals in April 2023.

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Science & Technology
The Story of a Sickle Cell Caregiver and Her Son | Vertex Pharmaceuticals

The Story of a Sickle Cell Caregiver and Her Son | Vertex Pharmaceuticals

02:59
A Working Mom's Journey as a Caregiver to a Sickle Cell Warrior | Vertex Pharmaceuticals

A Working Mom's Journey as a Caregiver to a Sickle Cell Warrior | Vertex Pharmaceuticals

02:37
The Stigma of Sickle Cell Disease | Vertex Pharmaceuticals

The Stigma of Sickle Cell Disease | Vertex Pharmaceuticals

01:57
Strength in Caregiving: A Mom’s Path to Advocacy and Love | Vertex Pharmaceuticals

Strength in Caregiving: A Mom’s Path to Advocacy and Love | Vertex Pharmaceuticals

02:04
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