Healing.
Health.
Hope.

Voices of Winged Warriors unites grievers, Warriors, and allies through programs and activities that help transform life with sickle cell.

Honor your warrior for Sickle Cell Awareness Month in September

We're again providing free profile frames for Sickle Cell Awareness Month. If you'd like us to create one for your Winged Warrior, email a photo, along with your Warrior's name and age to us at change@sicklecellvow.org. We'll also add your Winged Warrior to our Love Lives Gallery. Questions? Email us at the same address or call (833) 688-I-VOW (4869).

For Grievers

If your sickle cell warrior has passed away, Voices of Winged Warriors (VoWW) is here for you. This collective of caregivers, loved ones, and allies left behind continues to educate, advocate, and drive action for better sickle cell outcomes by channeling sorrow into strength.

Together at VoWW, we honor our warriors by helping to create change for a better future.

GRIEF SUPPORT

For Warriors, Caregivers & Allies

Voices of Winged Warriors fights to keep Warriors well. Research is bringing cures and transformation to many, but we know that isn't every Warrior's reality - whether by choice or by chance.

So, to meet today's needs while preparing for future opportunities, VOWW promotes everyday health maintenance tips, ongoing care management, and emergency room guidelines. We're coordinating programs and collaborating with others to help get the right care for individuals with sickle cell.

VoWW wants a different world for you and we're fighting for it every day.

September at VOWW

September is Sickle Cell Awareness Month

September marks 30 days of intense attention on sickle cell and the impact it has on those living with the condition. We know it deserves focus every day, but here's our chance to help push awareness to action with even more voices behind us.

LEARN MORE

Know Your Care: Adult maintenance care

Tune in to our conversation with Duke University's Dr. Nirmish Shah. We discuss why Warriors need both a PCP and a hematologist, how to put together a pain plan, what all those labs mean, where to turn for vaccine guidance, and more.

WATCH HERE

Save the date for FallFest '26 Wellness Encounter

Adult Warriors, caregivers, friends and family members can receive on-site health screenings, and we'll have games, giveaways. PLUS “Talk to a Teacher: Sickle Cell and Special Ed" To learn about 504 and IEP Plans, assessments and your rights.

LEARN MORE

Winged Warrior Thomas drawing on his iPad

A promise in a movement for change

Whether your loss was today, recently, or years ago, we know grief persists. We know you're in a club you never wanted to belong to. But, together we can be a tribe, finding our way forward while voicing a better world into existence for other warriors.

I'M INTERESTED

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Tell us about your Sickle Cell Warrior

Even though they've passed on, your Winged Warrior is important to you and their life matters. Here at VoWW, we will make space to memorialize our warriors and celebrate their lives. We encourage you to share their journey and yours.

SHARE YOUR STORY

Quality Emergency Department Care

One of VoWW's primary strategic goals is to move beyond awareness. Through Sickle Cell STAT, we work to help ensure that knowledgeable, quality, guideline-based emergency room treatment becomes the standard for every individual with sickle cell.